The websites I have created are purely an attempt to provide an International On-line Support Network or forum for people affected by "Townes-Brocks-Syndrome." If you are not sure of anything, please contact me through this website and ask.
This group is always open to those interested and wishing to make friends, share information and support with those affected by this disorder.
Our purpose is to –
have a support group; not a medical website. Therefore no medical advice/treatment will be given from within the website to individuals. However, referrals can be recommended and suggested to members.
We do -
assist researchers study symptoms and the varying degrees of symptoms relating to Townes-Brocks Syndrome.
present in a non-threatening manner an up-to-date library of files, resource links, database messages/ history input logs and photos regarding TBS symptoms.
provide a place where members can express their own views, receive advice on how to seek referrals to medical and professional agencies worldwide to gather their own private medical advice and assistance.
sincerely care by providing and giving friendship equally to all members.
encourage members to have confidence and learn more about their rights to be heard and to speak up, ask for second opinions if necessary and, freely ask questions to medical professionals, if they don't understand.
Membership is free, specific news items will be grouped within the private area of the website, however all common news articles may be displayed amongst any of our open public pages.
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