Symptoms - what are they? | Please read

Symptoms can vary and its hard to play down any of the following symptoms because they can be slight or at the end of the scale severe. For each parent, its a worrying time.

Whether it be TBS specific that causes this symptom, or whether it is a weakness prone to that section/area it does affect our TBS children. Some children display signs of symptoms, however when fully tested show the likeness is not related to the symptoms specific to TBS. This can be difficult for the parent as they come to terms with a condition, but on further investigation find it is not TBS, or what they feel is TBS specific is not a symptom at all. Please read the articles when you join the group, they are there for that very purpose - to help you learn and identify symptoms correctly.

As a point, please remember that there are an increasing number of websites set up on the internet, some selling the information, some copying the information and putting an incorrect or obscure translation or explanation.

Surfing is great, but it can be dangerous and turn into a very upsetting experience. Don't let this happen to you. If you become aware of information and you are not sure, confirm the genuine source and reference of the information, please don't just run with it as an 'expert' come back and check with us, you could save yourself and your family a lot of heartache. How do I know this ? I have seen members fall into this trap and it has been very upsetting for them. Don't be niave, don't be another one.

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