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Our websites are strictly for the members and their friends to read articles, use the tools and links to resources for their educational and research. All information collected and stored on our websites are given as authorised links where we have sought permission to display these either as links and/or text relating to their websites. Any content that is stored within the websites therefore belong under our control. No copying, duplicating or tampering with the content held under our control is allow by viewers and visitors of our websites. All content is protected under copyright rules causing legal action to be taken if anyone misuses or duplicates this information without the permission of the owners of the websites otherwise known as www.good-health-network.com, or www.yahoo groups tbs support group.
An International On-line Support Network for people affected by "Townes-Brocks-Syndrome." This group is open to those interested in making friends, sharing information and support with others affected by this disorder. Our purpose is to –
1. provide a family support group free from inappropriate material via a web-based support group run explicitly under 'not-for-profit guidelines'.
2. There are no advertisement materials or intent to lure members to buy, trade or sell. It is a non-profit making group with no membership fees.
3. provide members worldwide with a protected and safe environment via the internet free from spam and other forms of misuse and inappropriate behavior;
4. provide TBS members, their families and friends a forum where they can come together to share and learn about the rare syndrome from a laymen’s point of view.
Our support group is not a medical web-site, therefore no medical advice/treatment will be given from within the web-site group. We do -
1. assist researchers study symptoms and the varying degrees of symptoms relating to Townes-Brocks Syndrome.
2. present in a non-threatening manner an up-to-date library of files, resource links, database messages/history input logs and photos regarding TBS symptoms.
3. provide a place where members can express their own views, receive advice on how to seek referrals to medical and professional agencies worldwide to search and gather their own private medical advice and assistance.
4. sincerely care by forming and giving friendship to all members.
5. encourage members to have confidence and to learn more about their rights to be heard and to speak up, ask for second opinions if necessary and, freely ask questions to medical professionals, if they don't understand.
Membership is free, specific news items will be grouped within the private area, however I should clarify that all common news articles will be displayed here.
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